Comments for Eric's Carcinoid Journey

Comment on It’s Back by Susan

Susan — Mon, 12 Dec 2011 05:54:24 +0000

I recently came across your site and have been reading along. I thought I would leave my first comment. I don't know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often. Susan Cancer Treatment Guide

Comment on …and now it’s something new (cont.) by Vicki

Vicki — Tue, 22 Nov 2011 02:43:23 +0000

Greetings Eric and Leonie – I am and “old noid” – into my 11th year now.
Had bowel resection in 2000 and liver resection three months later – March 2001. Have been on Interferon (briefly way back) Sandostatin LAR for
eight years. In between Harvey Turner’s Lu 177 at Fremantle.
Sirmicrospheres last year – directly into liver. Before that I was stable for many years, however in the last two years tumours are on the move.
I remain well, except for tiredness and of course have to be careful with
what I can and cannot eat. At the present moment my oncologist at St John of God Subiaco is speaking with radiologists to decide which nuclear treatment will be best for me at this stage. I have followed your story
from your surgery days, when my friend Pierre (sadly he passed away in July) told me of you and your journey. I shall keep in touch. I hope
and trust that you are making a good recovery from you last set-back
a couple of months ago Eric. I was a tough time for you both by the sound
of things. Much better times ahead for you both Continue to enjoy those
little breaks away. Every best wish and special regards – Vicki

told me about you

Comment on About Eric and Carcinoid Cancer by HJ Liu

HJ Liu — Sat, 03 Sep 2011 16:32:45 +0000

Hi Eric,

I am seeking PRRT in australia. Who and where do you recommend? I live in Hong Kong now.

thanks

Liu

Comment on Lutetium 177 – Second Treatment (The Lab Rat) by Donn Schlossman

Donn Schlossman — Thu, 01 Sep 2011 13:19:27 +0000

Wonderful info it is definitely. My friend has been looking for this update. Thank you;)

Comment on Ok, Here we go… by testing

testing — Sat, 27 Aug 2011 22:19:48 +0000

It’s hard to seek out knowledgeable folks on this subject, however you sound like you understand what you’re talking about! Thanks

Comment on Archive- Diagnosis to Surgery by Godaddy hosting promo code

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Comment on Lutetium 177 – Second Treatment (The Lab Rat) by Sam

Sam — Thu, 18 Aug 2011 05:22:41 +0000

Dear Rose Masuda, I have just been diagnosed with carcinoid tumors in my ilium. Lutetium is currently not available in Toronto, Ontario. I have heard that its approved/possibly funded in Alberta, If you could give me any feedback on your experience and who to get in touch with i would be greatly appreciative. starbucks7777@gmail.com

Comment on Archive- Diagnosis to Surgery by python strings

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Comment on Archive- Diagnosis to Surgery by Kasi Kabala

Kasi Kabala — Fri, 17 Jun 2011 08:24:44 +0000

Hmm it seems like your website ate my first comment (it was super long) so I guess I’ll just sum it up what I wrote and say, I’m thoroughly enjoying your blog. I too am an aspiring blog writer but I’m still new to the whole thing. Do you have any helpful hints for novice blog writers? I’d definitely appreciate it.

Comment on About Eric and Carcinoid Cancer by Eric

Eric — Fri, 15 Apr 2011 10:58:37 +0000

Hi Richard,
In my case I have two carcinoid mets in my left eye orbit. One on the lower muscle and one near and on the optic nerve. This is extremely rare occurance but it certainly happens. It took Gallium68 wholebody PET scan to find them. I have not noticed flashes or floaters but if the optic nerve is affected it certainly could produce such things I would think. Best talk to your oncologist about it and getting some sort of scan of your head methinks.

Best regards, Eric