Comments for Eric's Carcinoid Journey

Comment on About Eric and Carcinoid Cancer by Carmen Avila

Carmen Avila — Sun, 01 Apr 2012 04:59:21 +0000

Dear All, my brother has carcinoid tumors in his left lung. In 2009, the dcotors removed a 6lb carcinoid tumor from this chest, it appears the tumors have returned. The doctors put him on Octreotide but it has not been successful. I am looking for any information, referrals, advice on how to help him. The doctors have given up on him, I refuse to do the same. I know there must be some help out there…would appreciate any thoughts, suggestions, advice. We live in San Antonio, Texas.

God Bless,
Carmen

Comment on About Eric and Carcinoid Cancer by Vicki

Vicki — Wed, 21 Mar 2012 09:53:36 +0000

Hi there Eric and Leonie – I trust you are travelling well right now -
happy and smiling. I am, despite two PET scans showing spread to
the lungs and pelvic bones, aso many lymph nodes in the abdomen.
I had these done early in the year and my Oncologist – Dr David Ransom -
has me under the care of Dr Harvey Turner. I had three of these lutetium
treatments 7 years ago, and I am sure it is these treatments which kept
everything “stable” for about three years. I am in no pain, for which I am
very grateful. Maybe some Nurofen now and then for tummy cramps which
come just after my Sandostatin injections. I hope this is encouraging, especially for you – Geoff and Andrew. I am in my 12th year of living with
carcinoid. My wonderful oncologist tells me he has quite a few patients with
carcinoid who have files as thick as mine – so new treatments are
becoming available all the time. I plan on being around for many more years.
I hope all is well with you Eric, and that you are over the set-backs of
2011, enjoying your lovely little corner of the world. God Bless you both -
keeping you in my thoughts and prayers. You also Geoff and Andrew
Vicki

Comment on About Eric and Carcinoid Cancer by Neil & Jane Bribie Island

Neil & Jane Bribie Island — Wed, 14 Mar 2012 11:02:49 +0000

Dear Leonie & My Hero,

We are constantly thinking of you both and send you both our love

Neil & Jane

Comment on About Eric and Carcinoid Cancer by Leonie

Leonie — Tue, 13 Mar 2012 01:13:14 +0000

Hi George and Andrew,

Good luck with this journey… while it can fell very overwhelming when we get the diagnosis… please remember that you usually have time to consider your options … so please look around… talk to your doctors… do your research and then make a decision as to how you want to proceed.
After talking with many carcinoid and NET survivors you can generally manage the disease process to live a ownderfully full and happy life with time out ocasionsally to deal with the cancer itself.
Warmest regards

Leonie and Eric

Comment on About Eric and Carcinoid Cancer by Andrew Falicz

Andrew Falicz — Mon, 12 Mar 2012 18:32:37 +0000

Sorry for my spelling.
Doctor just called me 3 hrs ago that in my removed lymphatic gland (week ago) they founded carcinoid…

I don’t have any symptoms J just had painful node and it didn’t go away after 2 weeks of antibiotics.
I am now in Saudi Arabia (working) but I am Australian.
I don’t know what to do ?
I am loosing my mind.

Comment on Lutetium 177 – Second Treatment (The Lab Rat) by 2d barcodes

2d barcodes — Sat, 18 Feb 2012 04:37:46 +0000

2d barcodes…

[...]Lutetium 177 – Second Treatment (The Lab Rat) « Eric's Carcinoid Journey[...]…

Comment on About Eric and Carcinoid Cancer by Geoff

Geoff — Wed, 15 Feb 2012 08:58:50 +0000

Sorry Eric my last post slipped and I knocked the submit. Anyway I just have to wait and see whats gonna happen. I just want to say thank you for sharing your story to us all.

Blessings to you mate.

Comment on About Eric and Carcinoid Cancer by Geoff

Geoff — Wed, 15 Feb 2012 08:56:34 +0000

Hi Eric,

I am a Perthite and my story is similar to yours, Back in 1995 I was jaundice and after about two years they found I had a carcinoid tumour in my bile duct I had to have a whiples procedure which they removed the gall bladder have my pancreas my juridium (forgive my spelling) and bits around and put me back together. at the same time I was diagnosed with Wilson’s disease which causes my body not to extract copper but to store it in the organs I have to take treatment for that for the rest of my life. Last week I had an appendectomy and they found a new carcinoid tumor and I am off for treatment for that over the next weeks I guess. My carcinoid seems to originate from another condition that I have called neurofibromatosis which is a neurological disorder. I am a little nervous as over the next few weeks it seems a little overwelming

Comment on It’s Back by Susan

Susan — Mon, 12 Dec 2011 05:54:24 +0000

I recently came across your site and have been reading along. I thought I would leave my first comment. I don't know what to say except that I have enjoyed reading. Nice blog. I will keep visiting this blog very often. Susan Cancer Treatment Guide

Comment on …and now it’s something new (cont.) by Vicki

Vicki — Tue, 22 Nov 2011 02:43:23 +0000

Greetings Eric and Leonie – I am and “old noid” – into my 11th year now.
Had bowel resection in 2000 and liver resection three months later – March 2001. Have been on Interferon (briefly way back) Sandostatin LAR for
eight years. In between Harvey Turner’s Lu 177 at Fremantle.
Sirmicrospheres last year – directly into liver. Before that I was stable for many years, however in the last two years tumours are on the move.
I remain well, except for tiredness and of course have to be careful with
what I can and cannot eat. At the present moment my oncologist at St John of God Subiaco is speaking with radiologists to decide which nuclear treatment will be best for me at this stage. I have followed your story
from your surgery days, when my friend Pierre (sadly he passed away in July) told me of you and your journey. I shall keep in touch. I hope
and trust that you are making a good recovery from you last set-back
a couple of months ago Eric. I was a tough time for you both by the sound
of things. Much better times ahead for you both Continue to enjoy those
little breaks away. Every best wish and special regards – Vicki

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