Unfortunately I have been a bit lax in keeping my bloy up-to-date, which I will get on to doing later today!

The major side effect of the LU177 treatment at the time of treatment in generally just nausea. Since it is being done under clinical conditions I would expect they will give you anti-nausea meds. They only mistake I ever made was during one treatment I turned it down so I could stay awake and watch the Ashes (cricket). The anti-nausea drugs did tend to make one quite sleepy. There were some additional meds given to protect the kidneys, etc.

I continued with anti-nausea drugs for about a week after treatment. Later after-effects usually were worst about the 2nd or 3rd day after treatment. Mostly lassitude, tiredness and general malaise. In effect it is a very mild form of radiation sickness. This wore off quickly and by the 5th day I usually felt better than I had before the treatment.

HOw you feel afterwards might be also impacted by what additional drugs they give you with the LU177. In my case, the first treatment included capcetabine (sp?). I had a severe agina reaction to that, and for consequent treatments that was not given to me.

Our treatments were generally done in groups of 4 (it was a clinical study). We arrived early in the day patient clinic, had temps, BP, ect measured and a shunt put in each wrist for later use. We were treated sequentually, so at the right times we were given some sort of tranquilising drug just to relax us, then a drug to protect the kidneys, pancreas, etc. This was ollowed by some anti-nausea meds and then finally the LU177. During the LU177 injection, they also had an injectible quick acting anti-nausea hooked up ready for use if required. For me the whole event was not a problem, and except for a few moments (probably less than 30 seconds) of slight nausea during the injection, all quite uneventful. We were kept in isolation for several hours, with hourly radiation readings taken and when they dropped sufficiently, we were released to go home. The latest I ever left was about 4 in the afternoon (I was the last in the sequence that day). The first person left about 2.

Hope this helps you. Since I know nothing of the protocol they intend to use on you, I could be way off on what you are in for, but I suspect it will be very similiar. These protocols have been published amongst the researchers and should be well enough known by your treating doctors.

BTW the results for most of the patients in the trials was very good. In my case, because I could not tolerate the capcetabine, I did not have the tumour reduction my fellow particpants enjoyed, but it did stop the syndrome effects for about 2 years, and as of my last scans in November ’09, no tumour growth. I just finished a new set of scans on Friday last week, so won’t know the results of those for a few days, but I Will be posting in my blog.

Best wishes for a positive outcome,

Eric

Because the trials were sponsored by the state of WA (rather than a drug company), they had been available only to residents of WA, but I believe the treatment is now available in all capital cities. I suggest you contact Harvey Turner directly, I am sure he can direct you to a clinic or hospital in NSW that can provide the lutiteum treatment or can tell you if it is now available to you in WA. I really don’t know anymore.

His contact details are:

Prof. Harvey Turner 08 9431 2888 jhturner@cyllene.uwa.edu.au

I hope this is helpful.

Best regards, Eric

Can you contact me via email please (eric@moonhaven.com.au). Also, where do you live and who are the drs you are seeing now?

you also might want to visit http://www.carcinoid.com.au . This is a website my wife established some time ago and it’s members (Aussies) will have recent info on doctors and treatments.

Stay well!

Eric Gully