Comments on: Post Infusion Day 3 http://eric.moonhaven.com.au/2007/07/20/post-infusion-day-3/ From diagnosis and treatment to living with carcinoid cancer Mon, 12 Dec 2011 05:54:24 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: admin http://eric.moonhaven.com.au/2007/07/20/post-infusion-day-3/comment-page-1/#comment-3 admin Sat, 21 Jul 2007 13:53:30 +0000 http://moonhaven.com.au/ericsstory/?p=6#comment-3 Hi Bill, Good to hear from you. I agree that Fremantle Hospital is a bit of a shock when compared to the more modern hospitals but the "rabbit warren" as we have taken to calling it houses some very advanced equipment and some of the best minds when it comes to dealing with Neuroendocrine Tumours in Australia. It is our understanding Dr Turner and his staff are at the cutting edge of dosimetry studies when dealing with the PRRT treatments. Yes the study Eric is on is looking at the effectiveness of the Lu-177 PRRT in combination with taking a reduced strength chemotherapy agent Capecitabine This chemotherapy agent ususally used for the treatment of breast cancer is thought to help accentuate the effectiveness of the Lu-177 Octreotate treatment. I hope you are able to find a suitable treatment soon. At least the Sandostatin LAR should help ease some of your symptoms. Eric certainly felt well and was able to return to his normal everyday activities whilst taking it. Do keep in touch... the blog will be updated regularly and you will also find the link to the RSS feeds at the bottom of the web page. Take care Leonie and Eric Hi Bill,
Good to hear from you. I agree that Fremantle Hospital is a bit of a shock when compared to the more modern hospitals but the “rabbit warren” as we have taken to calling it houses some very advanced equipment and some of the best minds when it comes to dealing with Neuroendocrine Tumours in Australia.
It is our understanding Dr Turner and his staff are at the cutting edge of dosimetry studies when dealing with the PRRT treatments.
Yes the study Eric is on is looking at the effectiveness of the Lu-177 PRRT in combination with taking a reduced strength chemotherapy agent Capecitabine This chemotherapy agent ususally used for the treatment of breast cancer is thought to help accentuate the effectiveness of the Lu-177 Octreotate treatment.

I hope you are able to find a suitable treatment soon. At least the Sandostatin LAR should help ease some of your symptoms. Eric certainly felt well and was able to return to his normal everyday activities whilst taking it.

Do keep in touch… the blog will be updated regularly and you will also find the link to the RSS feeds at the bottom of the web page.
Take care
Leonie and Eric

]]> By: Bill Claxton http://eric.moonhaven.com.au/2007/07/20/post-infusion-day-3/comment-page-1/#comment-2 Bill Claxton Sat, 21 Jul 2007 03:47:36 +0000 http://moonhaven.com.au/ericsstory/?p=6#comment-2 I am very inspired by your story Eric. Isn't it wonderful that your family is able to help you blog this story! I read about this blog on the ACOR list today, and I'd like very much to subscribe to updates using RSS (please share the URL for that). There is a lot of humor in your blog posts, at least for those in the know. Carrying around a discreet 5HIAA in a shoulder bag, really makes me laugh! I also like the explanation of "lots of lead shielding and bottles" and long periods in "the CT tunnel". I am also a carcinoid patient originally from California (I think my wife has written to Leonie before). I am living in Singapore and have visited Freemantle to meet Dr. Turner. Compared to Singapore's hospitals I found the setting a bit 'rustic', but he is a wonderful doctor, and has a very professional staff (as you have pointed out). For better or worse, although I have metastatic disease and syndrome, no liver mets can be seen on scans. This means I cannot participate in the CLEMENT trial, although Dr. Turner invited me. For patients that have positive Octreoscans, Lu-177 PRRT is effective in targeting tumors throughout the body. Dr. Krenning has written that this treatment is most effective for small lesions, and recommends early intervention. I would really like to get my PRRT treatment asap, but have started on Sandostatin LAR in the meantime. Wonder if the trial means you're also taking chemo to sensitise the tumors? Anyway, I wish you speedy remission, and will definitely visit Moon Haven in Margaret River when I visit Freemantle again. I am very inspired by your story Eric. Isn’t it wonderful that your family is able to help you blog this story! I read about this blog on the ACOR list today, and I’d like very much to subscribe to updates using RSS (please share the URL for that).

There is a lot of humor in your blog posts, at least for those in the know. Carrying around a discreet 5HIAA in a shoulder bag, really makes me laugh! I also like the explanation of “lots of lead shielding and bottles” and long periods in “the CT tunnel”.

I am also a carcinoid patient originally from California (I think my wife has written to Leonie before). I am living in Singapore and have visited Freemantle to meet Dr. Turner. Compared to Singapore’s hospitals I found the setting a bit ‘rustic’, but he is a wonderful doctor, and has a very professional staff (as you have pointed out). For better or worse, although I have metastatic disease and syndrome, no liver mets can be seen on scans. This means I cannot participate in the CLEMENT trial, although Dr. Turner invited me.

For patients that have positive Octreoscans, Lu-177 PRRT is effective in targeting tumors throughout the body. Dr. Krenning has written that this treatment is most effective for small lesions, and recommends early intervention. I would really like to get my PRRT treatment asap, but have started on Sandostatin LAR in the meantime. Wonder if the trial means you’re also taking chemo to sensitise the tumors?

Anyway, I wish you speedy remission, and will definitely visit Moon Haven in Margaret River when I visit Freemantle again.

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